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Senate Makes Way For Crohns and Colitis Awareness Week

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    Awareness will help search for cure

  • Duration 4:37
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Welcome back the United States senate designating this week crohn's and colitis awareness week.

These are two diseases that -- almost one and a half million Americans.

Including me I was diagnosed with -- twenty years ago this year so I'm very grateful for the Senate's resolution and I'm very happy to welcome our next guest to talk about it doctor James now.

Is an associate clinical professor and -- specialist -- Mount Sinai School of Medicine here in New York City good to see you.

And Rondell -- see -- -- executive director of the greater New York chapter of the crohn's and colitis foundation.

Of America -- a long time friend always good to see you -- as well.

All right doctor -- let's start for people who might not be familiar with these conditions that are collectively called inflammatory bowel disease.

What are -- There are two -- varieties Crohn's Disease which can cause inflammation or swelling and alteration anywhere in the -- -- track from the mouth.

To the -- -- sort -- colitis is only.

In the rectum and the Colin -- light as I just meaning inflammation.

One and a half million Americans one out of 200 Americans have these diagnoses.

And there is no cure.

There's no cure at this point.

We don't understand the essential nature of these diseases but the advances that have been made over the last twenty years alone have been extraordinary.

Advances in treatment but I was reading that the incidences of these.

Diseases is actually going it is and he's also going out with young people younger -- the incidents among the very young patient has disturbingly gone up considerably.

-- Rondell these conditions as we heard from doctor Marion.

Whenever anything involves the digested track it's not something that people typically talk about in polite company.

And so I've I'm guessing that because of that this senate resolution is so important we can't be half.

Hear -- proud of this resolution and it actually like to thank Harry Reid and packed -- grand friend senate for helping us to put through the resolution.

And that these are often very silent diseases as you said there.

Topics that can be embarrassing to talk about can be difficult employment issues and so a lot of patients really keep -- about them so.

Having this national awareness week is really crucial what is it.

Mean because the crohn's and colitis foundation.

You work with people impatience here in New York but there are chapters all over the country for people who might be dealing with this.

Or loved ones that people who are dealing with this what kind of services.

Does does -- yet they offer.

And and what might this resolution mean for that.

Absolutely there's actually forty chapters across the country so where every you are if you're someone who is affected personally by the -- -- family -- friends.

You know please let SF -- that need to be done -- CFA dot -- to see what we can do freely after education and support services.

And most importantly we put a lot of money towards finding a free search so.

People like doctor Marion can try to help create more -- -- they treatments for patients and try to.

-- chart doctor I tell us about the -- you talked about advances.

Give us sort of a big picture here for looking out maybe 51015.

Years from now what is what what do you say well they're two pieces to it.

One is the patient and physician education has improved immensely thanks to the CC FA so in the old days will still currently there's work to do.

People are misdiagnosed usually twice before they get their diagnosis with inflammatory bowel disease and a delay of one to three years is typical until people get the proper diagnosis that's unacceptable obviously -- making some inroads and educating patients and the physicians.

In terms of new medications and better understanding.

The research that the CC FA is really.

And driving the agenda for has been incredible in terms of illuminating.

These incredibly complex processes between.

Humans in their environment.

That produce these types of inflammatory conditions.

New molecules have been developed biologic therapies have completely revolutionized -- patients are avoiding complications from medications.

And -- -- of winning surgeries and even cancer with some of these advances the can be associated with these conditions.

Well let's hope that 1020 years from now -- they're talking about senate resolutions were talking about a cure found for these two conditions.

That affects so many people and I'm glad that the resolution specifically talks about the support staff -- -- -- fourteen the family members and loved ones of patients because.

Those of us who who lived with this know how important it is to have family and friends who.

Who look after us and doctors as well doctor James Marion thank you so much for -- -- thank you I don't normally see and everybody at the crohn's and colitis foundation of America thank you and camp all right.

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