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All right let me stop that we ran -- -- how how debilitating.
It a disease is this.
It's it's -- Quite simple obtaining and unfortunately it's a lifelong chronic illness which I think is the hardest part of that and -- majority of patients are diagnosed between the ages of fifteen and 35.
And but more and more children are being diagnosed every year and once you have -- it's something that you live with for the rest of your life.
And they -- -- so it would having to live within Elizabeth.
What does that mean -- -- individual how does it how does it affect an individual how do you deal with it.
You know -- that's probably something better be Smart and I actually was diagnosed with crimes that age of twelve I Bluetooth and so I am a patient.
And -- it often times takes a good amount of time to be diagnosed -- masks a lot of other illnesses and sometimes difficult to diagnose.
I'm and then once they diagnosed it often times takes a little while before -- kind of find the right concoction.
Medications -- therapies that we'll start.
Copying and cutting down information -- to start making a patient -- -- medication and it's therapy it's -- time dominant as well that you absolutely it's it's all involved what the researchers have discovered it's a real combination of genetics the environment and that bacteria -- -- -- affecting the -- -- system and creating I'm.
What can be a hazy as he -- a lifelong disease but it can be a -- long process just look at how to.
How to handle it best for yourself.
Absolutely and even sometimes when -- Good contraction is discovered after a couple of years it may stop being a good concoction you -- have to start all over again.
-- so it down Elizabeth what walked in what is what's being done to raise awareness about this and and -- -- phone towards finding a cure one would hope.
-- is the executive director of DC CF AN and they've really done a lot.
I'm actually the president and chief operating officer of company and related Tutsis yesterday -- I run an insurance company in midtown Manhattan be.
And to I was enlisted to be their corporate revenue chair for that takes steps swap which is gonna take place this Thursday -- -- this Thursday it this way Larry's.
It's down at the South Street Seaport it's -- an amazing event there will be.
I think about a thousand walkers they walked takes place from up by -- -- -- -- thirty.
People are -- of -- come from from all over people can still register.
From 537 there's a festival and then the walk is about two miles across the Brooklyn bridge and it's not really an athletic event you know it's really a rock -- -- -- events are important in in terms of raising winners and as you say raising revenues and absolutely absolutely my company was some.
Very involved in the process.
You know we -- -- listed by -- two to participate about eight weeks ago he and we had to I think corporate fundraising drive you know within our company and also.
Engage in a lot of our business partners and it was really a very rewarding experience for everybody -- -- Rondell you cannot.
Finally kill without raising money so this these critical these kind of step.
Absolutely every event we do nationally and locally as one -- one more step towards finding -- -- and Elizabeth is the perfect example of that her company.
She's being modest but her company has raised over 1151000.
Dollars for this -- and I'm.
-- it does is that -- you intend to stay involved.
You know what it's a very good organization my company has and I companies having an anniversary next you're going to be a hundred years old.
And for 99 years we really -- -- you know made it about business practice to support charitable giving.
And just participating -- TC FA has been a great experience so we do we plan to stay involved.
And what's your room to -- hopefully you have the -- ultimately it was a I'm very hopeful I have.
-- since my diagnosis of care will be found in my lifetime and I truly believe that we'll be the case I think we're getting closer and closer and I think he carries -- -- it's all right -- the very best of luck to you and the organization Rondell Donnelly she and Elizabeth thank thank you both so much for being here.
All right and that's the web -- -- on the screen go take a look at that test.
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