Also in this playlist...
This transcript is automatically generated
-- going -- 24 minutes after the hour now I'm an appointment this is FOX & Friends well in the early ninety's the -- he immediately got a devastating diagnosis for three out of their four children.
A rare genetic disease -- -- is -- -- or RP that would eventually lead them blind with no answers.
They took matters into their own hands investing over twenty years in research.
And creating the hope -- -- organization to help raise awareness.
And much needed funds to fight the disease joining us now the members of the -- -- a lot in -- -- I think led ski and Betty -- he and doctor Alex -- good morning to everybody and also Carla is here.
Thanks for being with us.
Tellme tell me what happened with you because it what you were born this way.
Myself right no it's it's recess if -- we -- of carriers Carlos and myself.
I don't have any symptoms.
I don't have any symptoms of I have perfect vision.
Right at it yet you can pass -- content to your kids -- and and how does that make you feel I mean as a mother if you you wanna all of that's on the best things.
My and a lot of telling your story well.
I mean I'm incredibly proud of my family because they did -- years ago my parents you know started.
Looking for answers and -- they never give up and we're closer than ever.
The science is amazing and and the advances in research -- credible but we really are.
Is that the only thing between us -- -- -- is really funding for scientific research and so that's what my parents dedicate their lives to.
OK and I think tell me tell me your story and and it as far as when you lost your vision.
I lost my vision progressively from the time I was about twelve.
Until I was about 225 and what was that like for you of the we played a baseball game you know when you -- recent in the back to class when I can't see -- I was actually diagnosed when one of my older sisters was diagnosed before I had any symptoms.
So it was kind of distinctive took to begin to experience -- symptoms kind of already knowing the the punch line so to speak.
But them -- him.
And you come up with this this campaign.
-- provision in the website is hope for vision.
And in saying that really the research is there you just need funding to make this all come together and you hope that by 20/20.
Your -- getting rid of these diseases that are -- the line.
At 80 sounds like an unbelievable -- doctor Alex Cohen tell me about you know how is this even possible.
Well the research is really amazing I mean the scientists who are helping us out -- doing really really great job.
-- may just enormous strides in the field recently the FDA approved a retinal prosthesis which gives people who have no light perception the ability to sense light any movement.
Minera there's a whole team of scientists -- are looking at ways to make the part of the retina that still there actually sense light and motion hopefully give people vision back at some point.
And that and this is at a costly attack how can folks get involved in and donate to this campaign.
Well I mean if you go to our website there are ways to donate their we have fundraisers throughout the country several times a year we have -- -- Miami Chicago California.
-- and then you know if you just.
Talked your local doctor even you know -- -- National Eye Institute are just there are many many ways he can get involved and donate.
Doctor Condit it's really neat you married into the family they say that he that daughter had -- to marry an ophthalmologist that was the world.
I think it's telling you what you do on -- -- -- -- you -- as thank you so much for joining us he was once again website hope for vision dot org thanks again.
Filter by section