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Stretched -- you ended up.
Thanks very much a young girl is fighting for her life with only weeks to live as she battles a deadly disease in desperate need.
And a lung transplant -- a national organ donor rule is the one thing keeping doctors from trying to save her life.
The only thing standing between my daughter's living and my daughter dying is the fact that she's ten -- That's unreal to assist in -- publicity and you have so much hope and then.
It just feels like you know everything was sort of shattered last week when she got so much worse.
And other parents have been dying ten year old girl are fighting to change that rule in hopes of saving her life doctor -- body.
Plus he's medically fit enough to bring in good morning tee time was not a -- it's such a sad story and obviously when parents see better and bases that they -- to try and help this little girl.
What is the rule in place because she's ten she can't be on the adult list.
Yes right now the cutting age is about twelve years old and on the upper limit is about sixty.
They sometimes stretch it to 65 but unfortunately in this case this is a genetic inherited disease she's had it for many years cystic fibrosis.
And her condition right now as we speak -- so what we're here is getting war some -- she has been waiting for about a year and have to get transplant.
But the only -- she will be able to get that is that all -- adults.
Would either say no or get their transplant if there's an extra won't we'll go to her.
Historically Gretchen I can tell you on -- surgical bases he was always very difficult to take it is it -- to tour and 200 pound.
Long from a man or woman to give it to -- but now surgically we have advanced technology has changed we're able to take part of the long and give it to her.
It's unfortunate that because of two years she's not making the list and they should.
So the one problem is that pediatric lungs are rare so -- words and other child would have to die and be on the donor list to be able to give that -- their lines this little girl.
But but some people ask this really tough question which is.
She has cystic fibrosis this.
So what is the lifespan of somebody even if she gets this -- -- and does that factor into where she would be placed on the list even if she was eligible.
Well certainly that's a fact that this that the committee needs to look at but there are living longer and longer they go to their thirties or forties it is becoming a chronic disease so they have a -- -- better chance to live.
But I can tell you in a case like this what's going to happen is.
That this surgical team that did did the ethical team all of them will get together they have to have an emergency meeting to take care case.
As a special case if she's really sick usually -- -- -- goes to the sickest person.
In the list.
And this is -- rare case as you said there were only twenty cases of transferring children in the last year.
And she's not gonna have a chance to wait for another pediatric -- to come so hopefully they won't take this case.
And our hearts go to the parents were really -- seeing this this pictures with her being -- -- -- -- and it is so -- and hard to watch what are the chances that even if she -- on this adult list that she would be able to find a match.
Well they did challenges still on him and that's an excellent question but at least she's in the game and I think -- would have been much much better chance to get it.
But right now she's just being completely outside that -- and they've been waiting for a long time so hopefully somebody would -- -- the segment.
I would consider her case very seriously he can save a life of this it's.
Beautiful child we we rural voting for her.
Right and I know that the parents have started a petition can put that back up on the screen do we have the full screen where there's a petition you can go there you can.
Sorry I can't read the information close enough but I'll put it on Twitter.
When I get it and -- this rule on change Kelly has a petition to change the -- changed -- war.
Change dot org and I'll put that on Twitter as well from folks out there dock side thank you so -- -- to --
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