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Ten year old Sara -- is dying from cystic fibrosis if she doesn't get a lung transplant soon she will.
In fact died that red tape is standing in the way she's two years too young.
To receive an adult liver.
We're asking for fairness for children.
All children should have equal rights to adults children should not be at the end of the line it's in moral it's unjust.
And an exception -- -- be made now -- not just for Sarah but for all of the children waiting.
Obviously -- -- long not liver Fox News legal analyst Peter Johnson junior spoke with Sarah's mother yesterday.
And was invited to visit -- at the hospital he also met with one of the doctors who can help transform the organ donor rule.
Going to your busy pacing I did I met met with this -- yesterday she's lovely stolen -- met serious.
Ask me about my life story told me her life story we played cards together she's strong but she's also Smart.
I think she understands what's going on in -- her life now and the struggle their parents and her and -- undergoing to keep her alive.
She and her -- trying to fight this federal government regulation that discriminates against young children.
Children as old as ten years old in this country more children die on that waiting list and get lung transplants.
And so what we have is a strangulation.
And so I had an opportunity to speak to doctor Stuart sweet yesterday.
One of the board members the organization that regulates this a Smart good compassionate man.
But admitted to me that they don't have the data.
To make of the decisions about how ten year old can be treated in this country who need lung transplants they said they going to be looking at it soon and quickly.
Perhaps in the next month but the question is is as soon enough for Sarah and the other children were dying.
Because of this ridiculous -- Also the debate being that ten year olds cannot be on this list you have to be twelve years old.
But at the fact of matter is are only about twenty pediatric loans available -- -- for transplant but there about 2000.
Do you hit right on the head and so what happens is.
The children become the stepchildren.
As it were the children become the least among us the children who need it the most.
For whom we have the greatest maternal and paternal instincts.
The -- to nurture our youngest of people -- most our society.
Become the forgotten.
And they die.
I -- to the statistics and they were staggering and it was staggering to me.
And speaking with doctor -- I tried to speak also a doctor John Roberts we should show his -- -- the president of the organization.
He wouldn't speak to me on the telephone about this week led.
They don't understand the statistics they say well we can't model we can't come up with the number.
That will judge who should get these lungs in ten year old children.
And who doesn't get these long what is that was -- that they don't have the data what that they're not sure that it would work.
What they've done is they said well if you twelve or older will come up with a number based on fifteen -- twenty.
Parameters if you twelve or younger then we'll just -- Pryor anyone -- priority to.
And if you're sick -- then the adults you have to wait on all the adults cell.
More healthy adults are getting the lungs sicker children are not get -- lungs and dying that's the fight.
Of Sarah and she says it all best and we'll say it again today.
It's not easy but it's possible.
-- -- -- -- I was going -- And he also spoke with her mother.
Do we have that.
I don't know if we're gonna have time to -- us for Sarah.
But we're gonna success as a collective group we're going to be hurt the people's voice matters.
My voice matters Sarah's voice matters she's not justice a statistic.
She's a person she's a child she is suffering she is dying.
That is a fact.
And people can go to change dot org to sign a -- hit it right -- good work thank you.
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