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-- We've been telling you about little Sarah's desperate fight for lung transplant and her family's -- To change the rules so that their little girl has a chance at life and saying that they can't measure how -- a child -- We know what come to my hospital room.
And you'll see how six -- She is dying.
She is dying.
-- -- his feet on a ten year old Sarah and her hand who needs a lung transplant she's with us now from Philadelphia to stress just how important.
They -- it's good morning to share.
Good morning -- we just heard your sisters desperate plea for her child.
I can't imagine what she's going through or for that matter what you're going through as you watch this little girl lay in hospital bed waiting.
For an organ what is the latest update.
Unfortunately she's still waiting she still waiting at the back of that line there were no -- last night she still desperately holding on to life.
-- unfortunately you know this yesterday rejected our fleet our second request for a consideration for Sarah.
So you know so said no -- being no exception for -- they'll be no movement the children will stay at the back of the line.
You're talking about you know as the United Network for Organ Sharing and that as a group that you need to petition to what you're saying they haven't changed their mind the rule is.
That you have to be twelve to be able to get an adult -- correct and pediatric -- are very rare.
-- -- Pretty much what they do is they let the children stand at the back of the line after all the adults and if all the adults don't want along -- get -- the children.
Which is not much different from not allowing them to get pediatric and to get adult -- The reality is there's only two when he adult pediatric runs every year and there's 2000 adult -- so by excluding the children from the adult loan for.
They're keeping the children from getting lungs and -- -- loans that are gonna slide down to the kids are those that are really damage to really diseased.
So let's talk about has -- gotten to this situation she suffers from cystic fibrosis which is it genetic disorder.
It affects the lungs but she really only became sick about eighteen months ago right.
That's true she's been battling the disease her whole life but she became very ill eighteen months ago and she went on oxygen.
-- you know can go to school anymore she couldn't do her normal.
Things and then about.
A hundred days ago she went into the hospital full time and hasn't been out.
Sense I want to read the statement from -- Kiki and which is a different organization that's connected to the Health and Human Services Department.
With the United States government.
The biological needs and circumstances of candidates younger than age twelve are different from either adolescent or adult candidates one key difference -- -- and lung capacity of donors.
And patients among these age -- agents.
-- -- -- etc.
your next step Sharon is to go to the Department of Health and Human Services I understand you have a congressman who's made that first -- Yes.
Meehan congressman Meehan has made that move for us he's reaching out -- to the head of the Department of Health and Human Services to take upstairs playing and ask for the next set of adult -- to go to Sarah.
We believe -- being quite a few others -- the next day or two who take up this fight.
And we're hoping that people contact their congressman and ask them to do justice for us because we need this to be heard.
I know I know you're asking for the help and people can go to sign a petition as well -- 61000 signatures that website is petition.
Dot -- changed out -- great.
Yes change dot org change Fedoruk and we've since yesterday it was a 24000 petitions now -- 60000 okay.
We are so grateful to have the support of people who care about Sarah -- Sharon thank you so much changed battle.
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