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-- -- to lawmakers are fighting to help bypass a federal regulation.
That prevents this dying ten year old girl from getting a lung transplant that she desperately needs.
Sarah is her name and she's suffering from cystic fibrosis and the doctors have said that she has only weeks to live at this point that because of -- age.
She can only receive a donor long after all the adult candidates have first.
Had an opportunity to receive that long I can't read her mother yesterday.
And she claims that the process is not fair.
-- -- listing it thinks that this isn't there must be a fair and actually equitable.
Less so you don't really think that's your child's going to be discriminated against and I felt like we got on.
We got on well in advance you know as soon as she qualified for an organ transplant we knew -- was going to be away and we got on us.
You know love and of of managing this situation for this for a mom whose child is in this.
Awful compromise position Peter Johnson junior has been working on this in his Fox News legal analyst saying that little Sarah.
-- and spoke with parents saw her.
And the effort that's under way by these members of congress including senator -- is there hope for that.
-- there is hope it because the law I think should be with Sarah murder -- ten years old dying of cystic fibrosis.
Who's literally being strangled unfortunately -- it by regulation has -- a half hour weather when most likable serious Smart young woman ever met in my entire life.
But there's a sense of utter powerlessness.
That a lot of us feel in America announced today because the federal government through the boards that they've created have said the children.
Should be subjected to a double stand -- children have less rights that sicker children have to go to the end of the line.
That healthier adults get the loans before the children -- even considered.
And that's -- the murder -- family.
Is fighting I spoke to a doctor sweet who helps make the the regulations.
And I try to think of any Robert sector Roberts he wouldn't come to the phone.
And they're stuck in this kind of dark ages mentality.
That they can't even rationalize this added that this week festival what's the statistical basis.
By which -- excluding children.
Who are under twelve years old but giving in to healthier adults he said well we couldn't come up with a statistical model to determine children's.
Likelihood of getting a long and whether they should get along from kids age zero to eleven because there's not enough for them -- nonsense Martha.
It's absolute nonsense it goes back to the eighteenth and nineteenth century in this country in terms of child labor and not having rights for children.
Let you know when I first heard this story the logical argument to me would have been that.
You know what compatibility for -- he has a huge issue so I thought well maybe in these younger children the adult long really doesn't.
War but but it doesn't sound like that that is trial.
No it's not true because a child can be given what's called a low bar transplant.
A piece the lower portion of a loan of both lungs and that can satisfy.
Their need for what the federal government and these doctors who make these decisions have done is say -- not -- -- scored the children who is a priority one.
If young -- learning and was scored you have a score in the sixties on a 100.
Every day Americans are getting lungs adults.
They have scores in the thirties and forties.
Who sicker Sarah the ten year old -- the adults and again in the lungs so it's a matter of fairness the -- and Felices.
I don't want my daughter to jump the line.
But I want the -- Americans policies -- what the sickest Americans be treated first yeah and the children or adults it's a matter of equal protection.
Under the law and I hope they do go to court.
And enforce this if they can't get satisfaction from Kathleen Sebelius.
Who can make the determination.
And losing daughters she hasn't responded yet -- I don't know what kind of formal plea has been made to her what I make it -- -- as we sit here today look at this family in Philadelphia, Pennsylvania at the Children's Hospital.
And say as a matter of fairness what can we do to help them.
Did they deserve equal protection of the law or should she become -- stepchild who dies not an anonymity but in the public.
Glare that will be a great national embarrassment is Sarah dies because we ignored -- in this country.
Question of age discrimination.
And the constitution.
Doesn't stand for who we are as a people thank you Peter Johnston junior almost down the stories and -- you well thanks for thank you -- you to listen to --
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