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Right now in Philadelphia there's a little girl in desperate need a lung transplant.
Her name is Sarah she has cystic fibrosis a disease that makes it very hard to breathe.
The problem is she's only ten years old a couple of years too young to go on the waiting list for adult organs.
In fact she can get -- -- adult organ only if every other adult on the entire list can't take it.
Is that there's so few child donors Sarah's parents say their daughter will likely die if the government doesn't change the rules.
For special treatment for Sarah from the day one.
But they've done is I've got -- look at their donor pool and the -- these rules are written and I venue of the discrimination against.
I'm happy for his wallet.
Equality for these kids the secretary of health and human services Kathleen Sebelius has agreed to review donation policies but Sarah's parents are saying.
Their little girl just doesn't have time to wait.
Trace Gallagher has this live from Los Angeles it's my understanding he spoke with Sarah's mom today.
And the reason -- she feels her daughter is being discriminated against is because organs are supposed to be given out based on need not on age so what twenty year old can't just jump ahead of a fifty year old little less that twenty year old.
Happens to be in much worse shape now the reason that kids under twelve.
Were put on -- with lungs are put on a list behind adults is because lungs from adults did not.
Fit well in the children's bodies but now doctors can make it work so.
While medicine has advanced the law has not.
And here's mom again.
Very frustrating because my -- doctors say that she would have just doesn't have a chance at life with adult lung infection with the pediatric.
And -- night it's very frustrating day that I think the red tape is standing between her and an opportunity.
Yeah mom says even if her child were to get on the adult list today it would still take probably a few weeks to get the -- ship and she's not quite sure her daughter.
Has that much time track Trace I mentioned the health and human services secretary Kathleen Sebelius anything from her.
Yeah they're -- this thing that a review could take months it could even take years in the mom said today that secretary Sebelius told her that she is powerless to change the -- but we checked on it and it appears that civilians has a lot of power.
The regulation reads in part and I'm quoting here.
Policies or practices that are the subject of critical comments remain in effect during the secretary's review unless the secretary directs otherwise.
Based on possible risk to the health of patients or to public safety and then under options it says civilians can again I'm quoting.
Direct the organ procurement and transplantation.
Network to revise the policies.
Or the practices.
Here again is Sarah's mom.
Couldn't hear that they have no power to change -- shift of power to change it.
It's game that's going back and forth each and every day my child -- Bottom line in this policy is eventually review jet that will likely help kids in the future but.
Very unlikely to help Sarah and -- -- and Trace Gallagher some numbers for you now.
So there is one of about thirty Americans aged ten or younger who's waiting for a -- transplant.
And as of this afternoon a total of more than 16100.
Children and adults were waiting for lung transplants in the United States.
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