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Right now in Philadelphia there's a little girl in desperate need of a lung transplant.
Her name is Sarah she has cystic fibrosis a disease that makes it very hard to -- The problem is she's only ten years old a couple of years too young to go on the waiting list for adult organs.
In fact she can get and -- adult organ only if every other adult on the entire list can't take it.
And -- there's so few child donors Sarah's parents say their daughter will likely die if the government doesn't change the rules.
-- special treatment for Sarah from the day one.
But it doesn't think that doesn't look at the donor pool and the way these rules are written and I thank you that the discrimination against.
And I'm happy for his wallet.
Equality for these kids the secretary of health and human services Kathleen Sebelius has agreed to review donation policies.
But Sarah's parents are saying their little girl just doesn't have time to wait.
Trace Gallagher has this live from Los Angeles it's my understanding you spoke with Sarah's mom today.
And the reason -- she feels her daughter is being discriminated against is because organs are supposed to be given out based on need not on -- so what twenty year old can't just jump ahead of a fifty year old unless that twenty year old.
Happens to be in much worse shape now the reason that kids under twelve.
Were put on -- with lungs are put on a list behind adults is because lungs from adults did not.
Fit well in the children's bodies but now doctors can make it work so.
-- medicine has advanced the law has not.
Here's mom again.
It's very frustrating because my child's doctors say that she would have justice.
Have a chance at life women don't long -- with a pediatric.
And so -- it's very frustrating today -- -- -- the red tape is standing between America and an opportunity.
Yeah mom says even if her child were to get out the adult list today it would still take probably a few weeks to get the lung -- she's not quite sure her daughter.
Has that much time track Trace -- mentioned the health and human services secretary Kathleen Sebelius anything from her.
Yeah they're reviewing this thing that a review could take months it could even take years in the mom said today that secretary Sebelius told her that she is powerless to change the rule but we checked on it and it appears that civilians has a lot of power.
The regulation reads in part and I'm quoting here policies or practices that are the subject.
Of critical comments remain in effect during the secretary's review unless the secretary directs otherwise.
Based on possible risk to the health of patients or to public safety and then under options it says -- -- -- can again I'm quoting.
Direct the organ procurement and transplantation.
To revise the policies.
Or the practices.
Here again is Sarah's mom.
Didn't hear that they have no power to change it she thinks she has empowered if changes.
-- game going back and forth each and every day my child -- Bottom line in this policy is eventually review jet that will likely help kids in the future but.
Very unlikely to help Sarah and -- money -- Trace Gallagher some.
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