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52 minutes after the hour wolf time is running out for ten year old Sarah -- hand.
Only weeks to live her parents are now begging Washington for help.
They're trying to cut the red tape -- blocking Sarah's life saving lung transplant simply because of her age.
There feels so bad -- so scared and she asks me at night before she goes to bad if she's gonna die.
She asks me she says mommy am I in -- wake up tomorrow morning in America the children are last in line.
When it comes to their -- that we're gonna treat a dying child last.
It's just not right it's not moral.
It's not just.
It should be illegal.
And it's not like any other country does this -- last resort.
Health and human services secretary Kathleen civilians Fox News legal analyst Peter Johnson junior is here he's been in Constant Contact with the family's been covering.
This and infected in an interview we just aren't there -- absolutely and and the -- and Phillies in the sprint for life today.
They've engaged a law -- -- pepper Hamilton national law firm.
To go head to head with Kathleen civilians and the federal government they've written a letter to Kathleen -- bill is in this in this -- -- You're violating your constitutional rights our daughter will die as a result of it and they point out that in 2011.
The death rate for children.
Undergoing transplants awaiting transplants was 62%.
And verses 26%.
-- for -- -- we have now is an all children left behind policy in America what we have now in America.
Is almost -- slavery policy.
Where they don't count children as a full person.
Are essentially the the -- and has evolved but our way of handling this transplant situation.
Really hasn't so the family and is dealing with this little ten year old -- -- cystic fibrosis.
And if she's not able to get this adult -- -- -- -- what -- helps -- -- Grosses builds of mucus in the lungs and other organs and in the pancreas and -- can kill you and it's killing her and she will die in a matter of weeks.
Without it and you've -- right on the head.
Children go to the bottom of the list all she needs is a piece of a left low and a piece of -- right blow in order to live.
But the federal government and Kathleen Sebelius say well we're gonna look at this we're gonna -- believe they're gonna literally study -- to -- Death -- I'm taking are they sacrificing.
The -- like an adult that might be waiting for that global or is it well that's less than the game they want to play.
You can accept that well if you give it to a child you can take it away from an adult but I think -- and met a matter of ethics and morality we should see children.
And adults on the same plane now the truth is a child has long -- -- of the truth is Sarah could potentially be cured.
As a result of this the truth is.
That we try and nurture our youngest.
Whether it's genetic it's instinctual -- these -- the people that we need to bring through.
But the children do not speak the children do not make the policy.
And the federal government through the doctors I spoke to.
Can't articulate why they're doing this the numbers are devastating though if your child is a great kid -- -- -- and -- somebody differently now has hired this will offer -- they have a national note with the pro Bono.
OK so what what -- they like to see an injunction that words what they -- -- guess -- what they wanna see is Kathleen Sebelius has the power today.
With the stroke of the -- -- if she's watching she could do it within one minute within email.
And say the under twelve Ruble has got to go we're gonna make it equal for everybody United States we're gonna give organs based on need.
Not based on a child's age she has that power this organization was created by statute by the congress by the federal government.
She can do it today which he has said.
Well we're gonna study and if they studied other to a three weeks.
Sarah will pass from -- or weeks or months and yes you will pass and release her on and other children will as well -- about Sarah it's about the rule.
Be -- not only need but on it there right now it's on a number I need you wanna see that term -- and franchise so does -- -- a lot of -- and the street Peter Johnson but it is still stay on.
But meanwhile great.
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