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I'm a glimmer of hope in a heartbreaking medical case we've been telling you about ten year old Sarah -- -- hand dying from cystic fibrosis in desperate need of a lung transplant.
The current health care rules ban her from being added to the adult transplant list until she is twelve she's ten.
A federal judge them just issued an order to change that but the health and human services secretary is an on board yet.
Transplant surgeons and health care providers to.
Are based on their best medical judgment.
Most appropriate way.
To decide allocation.
What that means joining us right now doctor mark -- doctor big break in this case would chewed through which we take from.
Well first of all I think -- -- first problem here is -- Kathleen Sebelius is not a physician and she's been saying that from the beginning I'm not really qualified to say who should get a transplant who shouldn't.
Maybe -- justice secretary should -- a physician if that's how she's gonna talk because she has good.
The ability to actually approve the sport create a pilot's trial where children like Sarah can be -- in this.
I am I think it's amazing and wonderful that the judges come out like this and I'll tell you why.
Because the technology is changing Brian.
Gretchen the technology is different than it was a few years ago when this policy came in to place.
Children can now get part of adult -- not entire lungs we have the ability to do those kind of transplant.
That makes it more important to children be at the top of the list their younger.
Statistics show that they actually will do better than adolescents who who have raging hormones to deal with so I think we have to give someone like Sarah -- cystic fibrosis also cystic fibrosis.
Also is very very deadly and it looks like without this transplant she's not gonna -- more than a couple weeks.
Right so is this a case bureaucracy following very far behind.
Technology because why if if it's so apparent that technology has come up to speed in that kids can in fact survive with adult longs then -- -- bearcats seem to be holding back.
Well if you've already said why that was extremely well -- I think they are holding back because they have some rule behind behind and that's what makes them bureaucrats to begin with I think.
If you talk to.
Experts and lung transplant off the record.
You know -- they're not in the spotlight they would tell you this should happen someone like her should get and he uses an argument well -- other children with this problem.
How you gonna choose which -- to go first well that's the problem with a transplant list to begin with they should be on the list.
One thing I want to point out there about cystic fibrosis -- only about a 150 to 200 transplants a year.
Of CF and -- they tend to live about 80% of them -- a year 50% live five years.
It is a very very difficult disease and there are other organs involved including the pancreas and liver.
Which she's still going to have problems with.
But without this there's nothing it's the best chance she has to what are we as Sarah gonna win because she got publicity away and other kids -- to die because they didn't.
Well I think first of all Peter Johnson has done an incredible job bringing -- to national attention I think that it will lead for it.
But kids like Sarah to live not just Sarah they will come along for the ride on this -- there in this group as soon as this policy changes children will be given a chance to -- And we should just be clear that just because the judge signed off on this doesn't mean she's gonna get a transplant tomorrow she's just on the list exactly but over -- thousand lung -- -- it increases your chances greatly I'm really hoping that -- -- -- -- to -- doesn't have a long -- she's the heart lung machines are on the stand -- She's in the intensive care unit she's already -- a -- -- this is a big deal to get started keep your page you're on the when it gets to what she gets the call we want your analysis thanks so much -- -- -- okay wait two minutes people.
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