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You hope for the family today -- dying ten year old girl a federal judge has now temporarily allowed.
Ceremony hand to be placed on the adult waiting list for a lung transplant she had been in eligible because -- younger than the minimum age for that list of twelve.
Her family released this video of -- when she got that good news.
-- Miller joins us live now we just -- Sarah's reaction how how -- the rest of her family react differently.
I think the word you just use that sums it up -- that that word is hope.
The family says for the first time in months now it now is experiencing some hope there are other emotions they described including.
Believe happiness and gratitude -- -- -- released a statement.
It reads in part and I quote -- placement in the queue for -- -- lungs will be based on the severity -- illness and she will not be penalized for her age.
Sarah's aunt who was in court when the judge made his ruling feels a renewed sense of optimism.
You're overjoyed and I just I couldn't believe it and I know -- ten days.
It could mean for a living.
-- good full life that she deserves.
The families also urging people to sign up and become organ donors.
So far not much reaction to the judge's ruling from the Department of Health and Human Services the agency issued a -- restatement saying.
HHS declines to comment on ongoing legal matters if you just secretary Kathleen Sebelius had previously rejected the family's -- -- -- Sarah on the list for an adult lung donation.
Saying she did not have the authority to change the existing protocol.
The organ procurement and transplantation network which operates.
Under HHS was set up by congress in 1984 to determine a uniform set of rules on transplants.
It is now scheduled to meet next Monday Martha.
To discuss possible revisions of it's protocols to NASA -- this is only at a temporary victory though really for the family that they they -- -- right.
Under this statute.
You're absolutely right the clock is ticking.
The judge's ruling was a temporary restraining order it will remain until in effect until June 14 at that time.
He's going to hold a hearing on the matter to decide it's Eric is going to become eligible remain eligible for -- adult long donation.
But by then the family hopes this issue will be moot because a successful transplant procedure will have been completed.
Sarah has been on the waiting list now operate child's lung donation since December of 2011.
And even we -- eligibility on the adult list of course there's no guarantee she is going to get a transplant.
-- medical experts say -- and often -- Far worse than adults who.
Undergo this type of procedure so now it's really a race against the clock for the family to try and get a donor.
Before that upcoming hearings and a little bit more time and we wish them that this so brave throughout this whole thing differently.
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