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A second child in desperate need of a lung transplant.
Has won the right to be on the donor organ waiting list for adults.
A judge today ordered the secretary of health and human services Kathleen severely us to put this eleven year old boy on the list after his mother filed the lawsuit.
That same judge just yesterday ordered civilians to put a ten year old girl on the list.
In response to -- similar lawsuit from that child's parents.
The girl celebrated in our hospital bed in Philadelphia after hearing the news but her family then said her health has now gotten worse.
She in that Boyer in the same hospital both children have cystic fibrosis a genetic disease that makes -- be extremely difficult.
The two lawsuits argue that the children need to be on the adult list because they're too few child donors.
Court hearings in both cases are set for next week meeting that the girl and the boy have at least eight more days to try to find -- -- organs.
Trace Gallagher is live force tonight at -- -- the girl doing Trace.
Whatever Bob says the right side of her hardest working way too hard because her -- simply are not working hard enough I wanna show you -- -- -- -- -- -- is way up there on the potential transplant less because based corporations -- Missouri 100 scale the higher your score the worse off the patient.
Of the 1682.
People waiting on the list only a 139.
Have a score greater than fifty which means they are in severe shape.
But -- score on Monday was a 66.
Extremely high and today it shot up even further to a 78 so the question is.
Even if she gets lungs does she have the time here's doctor Marc Siegel.
She will need immune suppressive therapy she will probably need antibiotics she's at a high risk of infection.
She's at risk of rejection of the -- there's also the issue in Sarah's case and all other.
People with cystic fibrosis who get lung transplants that other organs in the body are affected including the pancreas and liver.
Those have to be watched very carefully.
But doctors say if the lungs do become available she will get them within just a few hours shut.
Tall hill for Sarah -- what -- we know about -- second child eleven year old boy.
Well his name is Javier a constant as you -- -- eleven years old but more importantly he's eleven years and ten months old so in August he would be on the adult list anyway but the reason his parents went to court.
Is because they do not think he will make it until August and here's the problem.
His -- score we just talked about -- only 39.
Exactly half of what -- murder and score is so.
-- the -- is healthier but he's -- wave down the transplant list.
But his parents say they are willing to try any thing.
Especially sense hobby years older brother also died of cystic fibrosis.
At the age of nine while he was waiting.
For new -- -- Trace Gallagher live tonight Trace one pediatric lung specialist says patients with cystic fibrosis live until they're 31 on average.
He also says that lung transplant essentially cure the condition.
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