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Forty minutes that's the -- -- to give me a federal judge has sparked a huge ethics debate now.
By forcing the government to bend the rules to put two children in Philadelphia.
On the adult -- donor waiting list.
Both of these kids is really in desperate need a transplant.
The judge yesterday ordered the secretary of health and human services Kathleen Sebelius to put an eleven year old boy on that twelve and over list after his mother filed a lawsuit.
-- the -- earlier the same judge has ordered the secretary put a ten year old girl on the list in response to a very similar lawsuit from her parents.
Secretary -- is on Tuesday told a house panel she would not intervene in the girl's case saying medical experts should set the rules -- organ transplants.
-- -- lawsuits they claim to kids need to be on the adult list because they're just too few child donors.
The girl and a boy or same hospital both have cystic fibrosis.
-- genetic disease that makes breeding extremely difficult.
Former NFL star Boomer Esiason launched a foundation to help people with cystic fibrosis and their families after doctors diagnosed his son.
With the disease back in 1993.
This is his son is twenty one's 22 now right now right he's 22 in -- look and recently graduated from Boston College which normally gets that from -- former quarterback and current broadcaster over CBS's.
Co chairman of the Boomer Esiason foundation.
One of those visible figures in the fight against cystic fibrosis good on -- Well it's good to see a ship and thanks for having me you know this is a very tough story and how we've reached out to us -- her -- way I think her mother Janet really deserves a ton of credit here because CF mom and I sit in my own home there's nothing like -- -- mom I mean they're bulldogs they they will do everything to take care of their children.
Janet in this in this case really has moved mountains this is discussion that really needs to be had.
Anybody who has a parent of -- CF child knows what she's dealing -- I see those pictures I I've remembered Gunner in the hospital with the -- I know what the the that the mask over space and going through all the different things that you have to to fight cystic fibrosis and then to see these kids ten and eleven years old -- waiting prolongs.
They have to be made available if in fact we can find them and that's what you have to put them on.
The adult donor list simply because there aren't enough pediatric.
Loans available and the other thing that they are doing here there -- definitely -- -- light.
On the donor program's all around the country and why it is so important that we all become organ donors -- Heads out of your result in front of the building up today and -- -- just signed -- to be a -- I just couldn't stand.
Couldn't stand hearing that story over and over I'm like well there also.
Part of our message you know we we try to tell people that we need longs we need -- and -- are very very fragile organ.
-- last -- -- less than five hours outside of the body by you have to get them in the event in the recipient's body as quickly as possible.
Michael Brennan used to work for me back in 99 he died waiting for -- I have Gerry Cahill who works for me now he just -- as one year anniversary after receiving his -- both of these guys were adults both of these guys.
You know I had a chance.
I I think Saro I think any child in that situation has to have a chance and we is a as they.
As human beings have to give them every opportunity to receive these -- I'm not that.
Then not to discriminate against them because of their age that didn't fully understand twelve it looks in today's world like it's almost an arbitrary number it is and you know when you talk to these kids when -- -- are talk.
You're blown away by who she is and how can you not be attached to that.
And again -- I go back to the whole thing where this is a mom moving mountains to save her daughter and her daughter trying to move mountains to have a chance.
We all know that all lung transplant is not easy it's a very very very difficult.
Surgery go through I I've seen people go through it and lived through it and live long lives afterwards -- -- twelve years.
And -- also people seeing people that not have not made it.
After two months.
You after receiving -- long so it's a very very heartbreaking story but in my estimation.
We should do everything we possibly can help them and help them out live a healthy life your son gunners point 20 -- -- He's good he's you know just graduated from Boston College as you pointed out that did not want to go to U -- -- -- did not want a good Ole miss -- either a fool but -- -- -- he had a great experience there.
And I remember when he was diagnosed in 1993 they told us that he would have a very good chance at college -- -- the the increase in in drugs and in dealing with the disease.
And -- a great kid and I see these pictures now that -- showing here when he was two and three years old.
It's been an amazing story but Serra.
Still highlights the difficulties that we have in the world of cystic fibrosis that too many young people are dying way before they should do what what.
The person at home right now going man I love that that can what do what do how can people -- the first thing you can do it is become an organ donors self that's one of the lasting legacies.
That I think -- in general will have on all of us that they have highlighted this.
But secondly I I think what you can do is is make a phone call -- join a change dot org if you will go there sign a petition I've done this I've called the -- and humans services secretary -- -- and I understand -- situation she's in -- she wants the medical experts to make these decisions which I think is the prudent thing.
On her part but the fact of the matter is.
Janet it's our want the right route they got a judge to give them an injunction that to put them on the list to give them a chance right now at least.
And then it's up to the experts in the field to change this policy and hopefully do the right -- -- hope they do I hope so and I appreciate you have me on -- talk about it -- it's nice to see you thank you very much --
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