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A Fox News alert now on a heartbreaking story that has captured the nation's attention.
The little girl in Philadelphia who has only perhaps a week or two to live unless she gets a new long -- Getting word tonight at ten year old -- -- hand has taken a turn for the worse and is not breathing on her own her mother.
Has gone on FaceBook to ask for prayers they have into -- her officially we're getting word.
This just days after she won her right to get on a waiting list for adult loans.
It breaks your heart.
Sarah should fight for life inspiring millions of people though and igniting a debate and one that needs to be had over the complex guidelines.
Of organ donation her parents.
Are opening up about it all in an exclusive interview with fox.
Johnson junior his feelings are joining us -- -- you just spent some time with the family and this news that she's now been intimidated.
Has got to be there.
Very very said -- -- with -- tape we just so we -- that 24 hours ago with my daughter Lance Johnson.
And she was not feeling well at that point they were concerned about a fever.
She was alert -- while but then she started to fade.
A little bit to what they've done is in mechanical intimidation the tube down her throat so she couldn't breathe properly yes and it's a bridge for a transplant.
But also it's a very serious.
And disturbing sign of someone.
Who has the real problem -- Well this is stage this is also in in doing an interface and it's also allowing for her body to rest and that's -- absolutely is to pulled out of correct possible before this ends and before paying another procedure called -- at -- which is a long.
Heart machine which is even the next most serious.
-- step so this is a strong girl and a strong family in -- fighting.
-- her mother -- sitting at her daughter's bedside he spoke with talked about the age limit to how frustrating they are if they are yeah if it worked for these it's almost perhaps she would have a donor I want to.
Play part of this interview -- right now about what she's feeling listen.
The biggest -- -- to me is this notion that.
Get that sense arbitrary age and it somehow were asking for an exception.
-- asking for is for her to be treated on the severity of her illness and to get the lines of her doctors deem appropriate.
And I think they're the ones sort of there's acting like -- you know.
Ask you for this special treatment.
And we're not we're asking for them to do what her doctors say is the perfect best for -- like that the government deciding what is best for her -- they've never seen her.
So now she's been put on this adult organ transplant yes.
The list does it great and her chances of getting well yes because she was basically said second class citizen before they have a segregated list for children.
And other for twelve.
And and over and so what the -- -- if things don't give us an exception don't move it to the top of the line.
Do what's fair great people in America based on their sickness and their ability to take.
-- an adult organ and their doctor doctor Goldfarb said and he testified in federal court and that's one of the reasons they won the case for that for the time being.
That she can accommodate an adult long so why not allow children who can take adult loans.
To get the loans based on this sickness so what we have an American are healthier adults -- sicker children.
To the gate to get the adult lungs and a disparate proportion of children dying as a result.
Is this going to force lawmakers in Washington to rewrite the rules and -- Get rid of some of these arbitrary.
Age differential in my view through it it's actually true.
They'll be meeting Monday to look at the is rules.
This in my view is a dark ages approach to medicine.
It's a way that we devalue the lives of children in America so what is the constitution stand for.
I wanted to point for those at home that are watching to understand how great this millions -- is -- she's on the adult transplant list but if somebody older than her.
Is is eligible they get that -- -- think they don't go to as -- -- -- based and Judd -- brewing in Philadelphia.
It -- based on Hirsch who wore.
Her long allocation score she has one of the highest if not the highest.
In the state of Pennsylvania.
So based on that score she should be getting it as soon as possible he's at the top of the list she was at the bottom of the list because she wasn't treated as an adult.
Wonderful -- one other point though Peter that this this once again.
Highlights the need for people to register as organ donors if we had people actually go and register as donors that.
This did that the deficit -- of the available donor organs would make.
Such -- great point and many states you can do it on your license other states more complicated you get a couple witnesses easy.
To do it FaceBook and -- they go on FaceBook and I'm gonna be doing it myself go on the Internet as well for more information go to donate life dot net slash back slash register -- and now.
To get more information our prayers are with this fan's radar you can catch -- completed review.
With the family on FOX & Friends tomorrow morning Peter thank you and thanks to blanch great work -- -- have -- --
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