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Year -- -- Carnahan.
And her battle to survive Sarah suffers from cystic fibrosis and less she gets new lungs she will die.
Yesterday in an exclusive meeting our own Peter Johnson junior was invited by -- -- To visit them at the Children's Hospital of Philadelphia where they shared their battle for survival.
Mad just you go there and just like -- says she's never ever get into.
Peter joins us this morning with -- up close and personal view of their fight for Sarah's life hi Peter.
Good morning you know in the birthplace of liberty the burn -- -- family is fighting hard to to stay alive and I asked Janet burning him that the mother of Sarah.
Her feelings about the government deciding.
What should happen -- -- and whether in fact she should get lungs let's watch and listen.
If the biggest pressure anything to me is this notion that.
In that sense arbitrary age and it somehow were asking for an exception.
For asking for is for her to be treated on the severity of her illness and to get the -- of her doctors deem appropriate -- the the government deciding what is best for her and I've never.
-- seeing her.
And in the in the world of a bypass machine that's the mechanical machine that's forcing oxygen into series longs in the many tubes and and wires that are a part of keeping her alive in that room.
I met with this -- I met with did Janet -- her father the murder hand and grandparents and -- and chair and and it was clear that.
Life was much on their mind but so too.
Was the Specter of of of death.
And I asked the family about how they explained to what they explained to -- about what was going on in terms of her life.
And her struggle for life at the Children's Hospital of Philadelphia and this is what they -- -- -- lie and actually over the last week -- point blank asked listeners questions.
Questions about her condition.
-- -- -- Right -- her condition but then also.
What's been happening out and about the media and the government -- we have there might get in conversation.
Well yeah the passes that we could we explain exactly what happened to try to when this is done.
Here's the thing they did actually have on our iPad.
And we have right -- How on Friday night this -- and Fran.
After typing it up on a mini iPad went through what's going on in a very realistic.
Truthful way with their ten year old daughter.
About what will happen and why the standards are different.
For ten year old eleven year old children as opposed to twelve and and and adults says she knows how Graham.
The possibilities are the and that's the question that I asked and you see it it it is -- seriousness of intent.
There's a play full list we brought a little magic trick along that she opened up right away and she was tapping.
You know -- the Harry Potter -- on it and and was happy for a moment but as soon as the medication.
She felt sick and she felt sleepy and she went into her mother's arms.
In the bed -- interview was conduct and we'll have more tomorrow.
Of -- of being cradled but her mother.
She lives to go home for one thing that her father and mother have promised her.
What have they promised her on -- return home.
These mini teacup taking -- talking to breeders that are.
That was having you know a little bit of a heart attack.
But at this which probably can get anything she wants out of the morality -- -- -- -- -- should want traffic.
She really wants.
That's right it is judge Michael belts and came down with there -- ruling that may be yesterday that may be kind of a harbinger of what's going to happen what showed on the full screen.
He made clear that the fact that on Monday.
And emergency meeting of the committee of the organ transplant people shows that there is a grave -- question.
About the irrationality in the arbitrary nature of the process that goes on.
And in Philadelphia today.
Should what should be in the birthplace of liberty and life we've got a family fighting hard in the most American way.
To keep the life of their ten year old cigarette also fighting for the life of the young boy -- -- -- constant right down the hole.
One -- only two families together united in a fight for truth and for life.
And we'll have more on this tomorrow and incredible live view with her father talking about.
The burdens of keeping her alive and how it strengthened his love for both his wife and his daughter and his strength.
And in our American spirit that's beautiful thanks so much for sharing exclusive interview with us and obviously this will be very critical week you practice with Paul think -- became its.
-- -- here thanks so CL ER.
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