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And welcome back -- dot com -- thank you with us -- Friday afternoon tomorrow here in New York City is a great event.
That I am lucky to be a part of it's the take steps walked.
To benefit the crohn's and colitis foundation of America and locally here the greater New York chapter.
And we invited a couple people to join us here there's -- take steps.
And be heard wanna tell you a bit more about crohn's and colitis these are inflammatory about conditions personally I've been living with crown since 1991.
Quite well thankfully.
But we want to let you know about these conditions.
About -- about this event so we're happy to welcome here in our studios -- -- -- who is.
An assistant professor of medicine at Columbia University.
Who specializes in helping people with inflammatory about conditions -- to see you -- -- thanks very much for being here.
And Rondell down the least he is here as well -- is a very.
Dear friend of mine and she's the executive director of the crohn's and colitis foundation of America greater New York chapter.
Rondell thanks very much for coming in talking to us flexibility here -- let's talk about inflammatory bowel diseases because doctors -- -- I think that the that this is something.
That doesn't get a lot of attention these conditions.
Mainly because of the subject matter you don't typically talk about.
-- bowel problems in polite company and as a result I think that there needs to be greater awareness so.
First of all how widespread.
Are inflammatory -- conditions like -- -- -- And people living with this disease so that's about one -- 300 people unite states.
We know the most about the US and Western Europe but we also know that the disease is.
In the rest of the world and we're learning about that now so India and China are catching up to the rates that we're seeing in the US must -- as well.
Why do people get crohn's colitis so a lot of people have been working on this question and -- The answer is that it's some combination of genetics and the environment.
And our science has.
Exploded over the last twelve years.
We're learning more about the immune system about the -- I -- about the bugs -- the bacteria that live within our system and interact with the immune system.
And how the environment.
With in that combination.
Can result in the development -- inflammatory opposites now.
I was having some stomach issues for -- number of years prior to my diagnosis with -- tonight I had pretty much every test.
That could possibly.
The prescribed by a doctor.
I would say one.
Less pleasant then the next and it just took a long time -- it's so hard to diagnose.
These conditions and talk to us about treating them once they are diagnosed well I think.
Think that these diseases can manifest in so many different ways and so each person can have a different symptom.
For example diarrhea bloody diarrhea weight loss abdominal pain the most common things -- this is why people don't talk about crimes and -- -- cut -- -- I got it I think about I think that it takes a lot of energy to sort of think about it worry about it make an appointment with your doctor to talk about it.
And eventually I think people are referred to a -- for colleges to these symptoms don't -- a short amount of time.
And I think that's the biggest thing is to be persistent if your symptoms are persistent and get get the symptoms worked up I guess from colleges and treatment.
-- -- In the twenty some odd years since my diagnosis.
I know that there have been a number of advances in development since in certain kinds of treatments and medication that's available now.
Yeah I think that there's a lot of credit that should be given to the scientists working.
In the field over the last.
Twenty years I think we've made a lot of steps toward understanding the disease.
And in fact we have a number of new medications that have been.
-- and and approved for the treatment of this the disease in the last twelve years so a lot more options now than there weren't even looking back into the 1990s.
For treatment and there are a lot of drugs in the pipeline.
So I think it's important that that people know that most people can be treated very well and if you're not able to be treated well with.
The standard therapy that there are a number of clinical trials and other options to look into.
And guess we're -- just trained in this disease can help you get to those -- interest thing.
-- -- Who also has inflammatory bowel disease and and is and is now has risen to the ranks of the executive director of the crohn's and colitis foundation.
The greater New York chapter here here locally.
Run -- it you know you idiots such a motivation and drive and passion and I remember when.
When we first met years ago.
Do the walk that will be taking place at the South Street Seaport tomorrow.
Well as a walk that they pretty much you were organizing on your own here in New York City and this event has just exploded now.
And it's very exciting this'll actually be the fourth here that this is becoming nationally branded event for the -- they claim has foundation.
So it's now taking place all -- of the country and the forty different chapters that we have across the country.
We've raised 22 million dollars over the last three years and our goal for this year is eleven million dollars -- We needed all the support we can get and we hope people show up at the secret tomorrow that help us raise money -- veteran can do the good work he's doing.
So talk to us about the money that's raised the goal eleven million this year all the money that's been raised here.
It locally and at various take steps events around the country where does that money go.
So all of the money raised through tapes take steps goes to all of our mission related programs which includes a big chunk of that clearly is three search.
We are trying to support all the doctors and the researchers that they continue to.
Find new medications new treatments improve surgical procedures.
And then at the money also goes to -- education and support program so that we can really.
Support the patients who are continuing to suffer and make sure that they're getting an education they need and the service says and and work in advocacy in the government to try and raise even more money.
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